Who doesn’t love a checklist?! ✅
Care partners and family members of people with aphasia face unique challenges after stroke. They are often learning how to support someone with a communication disability while also managing changes to their own roles, relationships, wellbeing, and daily routines.
In our newly published research paper, we explored whether the existing Screening Tool for Carers of Young People with Stroke adequately captured the needs of carers supporting someone with aphasia. Through consultation with carers, we identified important gaps and adapted the tool to better reflect their experiences and support needs.
This work laid the foundation for the Carer Needs Checklist, which has since been transformed into a digital tool that helps carers identify their priorities and access tailored resources based on their individual needs.
A small step toward making support more accessible, personalised, and timely for families living with aphasia after stroke.
Determining unmet needs for carers of people with post-stroke aphasia: user perspectives on a screening tool: Disability and Rehabilitation: Vol 48 , No 13 – https://www.tandfonline.com/doi/full/10.1080/09638288.2025.2601805
This research is being undertaken by Nelson J. Hernandez, Speech Pathologist & PhD Candidate at the Aphasia CRE as part of the Communication Connect project.
