Development of an International Core Outcome Set for Post-Stroke Facial Palsy: COS-Post-StrokeFacial Palsy

Dear Healthcare Professionals and Researchers,

You are invited to take part in an online survey which takes around 10 minutes to complete.

The aim of this research study is to get agreement on a core outcome set for post-stroke facial palsy (COS-Post-stroke facial palsy). This means we will agree with researchers and healthcare professionals ‘what’ aspects of facial palsy we should measure after stroke.

We want to recruit:

  • Healthcare professionals: If you have worked or worked with or currently work with stroke survivors in acute and community settings or work with any sort of facial palsy as a result of stroke, we would love to hear from you about getting involved in this research.
  • Researchers: If you have been involved or are involved in stroke or facial palsy related research, we would love to hear from you about getting involved in this research.

The participant information sheet is attached to this email. This study has been approved by the University of Manchester Research Ethics Committee (2024-21316-38685). If you have any questions about participating in this research please email the lead researcher havvasumeyye.eroglu@postgrad.manchester.ac.uk

This survey will ask you to rate various aspects of post-stroke facial palsy and how important they are to you on a scale of 1-9 with 1 the LEAST important and 9 the MOST important.

This survey will collect limited personally identifiable details, including your name and email address (required for participation in the second round of survey) and demographic information (gender, ethnicity, country of residence, and professional experience duration). All personal information will be pseudonymised during data analysis and reporting.

By pressing the “Finish” button at the end of the survey you are confirming you submitted answers and consenting to us using the information you have provided.

If you wish to complete the survey please indicate you have read and understood the Participant Information Sheet (PIS) attached. Otherwise please do not proceed to the survey.

I am confirming that I have read the PIS and would like to proceed to the survey link here  https://www.qualtrics.manchester.ac.uk/jfe/form/SV_3yoDTQrBwJGowOq

(This button below will be included on the first page of the survey)

To provide your consent, please tick “Yes” to confirm you have read and understood the Participant Information Sheet (PIS) and consent to proceed with the survey. If you confirm that you have read the PIS and would like to start the survey, please click “>>”.

Please would you help us share this survey with your members, colleagues, and wider networks?

Many thanks in advance!

With very best wishes

Havva Sumeyye Eroglu | PhD Student

Division of Psychology, Communication and Human Neuroscience | School of Health Sciences | Faculty of Biology, Medicine and Health

The University of Manchester | G.700 Stopford Building | Manchester M13 9PL

Twitter: @Havvaseroglu  @Facialpalsyuom

Leave a Reply